As Net Cancer Day dawns I say goodbye to a very dear friend
It’s November already, Jack Frost has made an appearance on the odd occasion — I most definitely now know winter is approaching. For us rare beings November 10th is Neuroendocrine Cancer Day. Since the day my consultant told me my condition could be managed and treated but not cured I…
London, the city that keeps me alive more ways than one
My first memory of London; I am 11 years of age and in London with my Mum and Dad, we are passing a lamppost with ER printed on. Dad says “Biscuits look at that Elizabeth Reigns, you work hard sweetheart and you can be a boss too” My folks always gave me the encouragement and love needed to go forward in life. They helped me feel safe and secure. In 2012 I took the train with my hubby to London, this time not for a holiday but to see the expert Professor Caplin at The Royal Free. Despite needing diagnostic tests and treatment for incurable stage 4 neuroendocrine cancer and carcinoid syndrome Steve and I found time to explore new avenues. See museums, art galleries, The Tower, take in a show. One thing I am most certain of London, the city that keeps me alive more ways than one is my most favourite city.
Happy Scribbling Scottish Granny
About Me — The Writer with Carcinoid Syndrome I’m Elizabeth, I have a passion for writing and photography. I absolutely love to travel on our Harley Davidson and raise awareness of neuroendocrine cancer. I have a tremendous love for my family and Labrador Retrievers and try my best to live life to the full. My glass is more…
Talking about nutrition
Over the last year I have been missing out in meeting up with chums and support network at Neuroendocrine cancer support meetings organised by the charity TAECT We have however had zoom meetings. Had a chance to chat and share a story or two over the internet. Our last meeting we had a guest specialist. The zoom meeting was different this time it was a question and answer session with dietician/nutritionist, Tara Whyand specialising in Neuroendocrine cancer and carcinoid syndrome. This evening in particular we were talking about nutrition.
The rising increase of diabetes in the UK
Dr Elizabeth Johnston-young Medical Writing In the UK diabetes currently affects 4.9 million people. Diagnosis of this endocrine condition has doubled in the last 15 years. It is thought that by 2030 there will be as many as one in 10 people with diabetes in the UK. This chronic metabolic disease can cause all sorts…
Deafness can take a dark path —
Dr Elizabeth Johnston-young Senses when we have all of them and they are working we can take them for granted. Hearing loss comes in varying levels and is common, however very under appreciated by many that do not have the condition, as is being profoundly deaf.. Growing up with hearing loss can be…
Fun granddaughter’s can bring
Our house is usually always full of chatter. We have the uncanny skill of speaking and listening at the same time. Grandchildren and labradors bring much needed laughter. They are my essential sunshine on a rainy day. Most definitely turn my frown upside down and oh yes help me smile each and every day. I can always say what great fun granddaughter’s can bring.
Angry at the carcinoid syndrome diagnosis?
Life for everyone can be challenging. We all find the hum drum of daily living difficult at some point in our lives. When I was studying at university right out of high school gosh I thought life was difficult, when in fact it was actually pretty easy and straightforward. A lot of water has gone under the bridge since then my goodness. I’m married, have children, grandchildren, have enjoyed happy times, went through some sad experiences, proudly gained my PhD, and most definitely feel loved. I feel I was brought up fairly well and I have a glass full attitude to life and always try and look on the bright side. On meeting someone for the first time I treat them as a genius and work backwards and always have a “book and cover policy” — you never know what goes on behind closed doors or what is hiding behind that lovely smile. Although I am fairly level headed human and like the lion I am feel I can deal with anything, nothing prepared me for the day I went into the consultation room to be told I had carcinoid syndrome and it was incurable. Am I angry at the carcinoid syndrome diagnosis?
Frogs, nest building and watching by the pond
Nearing the end of March and we have sprung forward for daylight saving. Lost an hour in our bed did that cause any upset. Gosh no, woke up to a beautiful sunny Sunday morning, the fresh dew glistening on the blades of grass as I drew back the curtains. Six year old granddaughter Alexandra was getting her breakfast then off to dance. She attends a dance class every Sunday which she absolutely loves. For later in the day when she was back at ours it was arranged that we would go out on an adventure. This would include a drive to a Forrest Park and then there would be Frogs, nest building and watching by the pond.