As Net Cancer Day dawns I say goodbye to a very dear friend
It’s November already, Jack Frost has made an appearance on the odd occasion — I most definitely now know winter is approaching. For us rare beings November 10th is Neuroendocrine Cancer Day. Since the day my consultant told me my condition could be managed and treated but not cured…
London, the city that keeps me alive more ways than one
My first memory of London; I am 11 years of age and in London with my Mum and Dad, we are passing a lamppost with ER printed on. Dad says “Biscuits look at that Elizabeth Reigns, you work hard sweetheart and you can be a boss too” My folks always gave me the encouragement and love needed to go forward in life. They helped me feel safe and secure. In 2012 I took the train with my hubby to London, this time not for a holiday but to see the expert Professor Caplin at The Royal Free. Despite needing diagnostic tests and treatment for incurable stage 4 neuroendocrine cancer and carcinoid syndrome Steve and I found time to explore new avenues. See museums, art galleries, The Tower, take in a show. One thing I am most certain of London, the city that keeps me alive more ways than one is my most favourite city.
Happy Scribbling Scottish Granny
About Me — The Writer with Carcinoid Syndrome I’m Elizabeth, I have a passion for writing and photography. I absolutely love to travel on our Harley Davidson and raise awareness of neuroendocrine cancer. I have a tremendous love for my family and Labrador Retrievers and try my best to live life to the full. My glass is more…
Talking about nutrition
Over the last year I have been missing out in meeting up with chums and support network at Neuroendocrine cancer support meetings organised by the charity TAECT We have however had zoom meetings. Had a chance to chat and share a story or two over the internet. Our last meeting we had a guest specialist. The zoom meeting was different this time it was a question and answer session with dietician/nutritionist, Tara Whyand specialising in Neuroendocrine cancer and carcinoid syndrome. This evening in particular we were talking about nutrition.
Doddie Aid is back and I’m walking with Bella
It’s the beginning of 2023 and what better time to tackle something. Push myself through the barriers and spend quality time with my precious beloved beautiful Labrador Bella. Doddie Aid is back and I’m walking with Bella to help raise awareness of Motor Neuron Disease (MND). This amazing event not only raises awareness, gets everyone together, helps encourage exercise; no matter if you can take a couple of steps or run a marathon you can get involved. You certainly don’t feel excluded. Doddie Aid 2023 raises much needed funds for My name’5 Doddie Foundation which invests in research to find treatment for MND.
Virtual reality comes to Bristol Children’s Hospital — Elizabeth Johnston-young Medical Writing
During a 2 year project young patients with the use of the headset and SyncVR Fit Application for the duration of their physiotherapy sessions are carried off into a new virtual world. Enjoy time fully immersed in activities such as picking fruit on a tropical island, taking part in archery…
Childhood cancer awareness month
A diagnosis of cancer is devastating at any time. Can be a lonely scary journey at any time and leave us feeling isolated. Can you imagine being a child not understanding what’s going on and being hospitalised without our parents. For a youngster getting diagnosed with cancer can have a…
Buddy our amazing fox red Labrador
When my 20 year old son walked in the door with a cat box and said surprise I was not expecting to see a little fox red Labrador puppy. First instinct oh my goodness he is beautiful but going to be a lot of work. How wrong I was. Stuart and I tossed and turned for an hour or so deciding on a name for this absolutely stunning little boy. And finally it was decided Buddy was his name. From the beginning he followed me around, no matter where I went he was there; whether it was the sitting room, kitchen or bathroom he was by my side. One day my blood sugar dropped like a stone so quickly, he seemed to know, he tapped my leg and started whining. I most certainly wasn’t feeling too good. Checked the old glucose level and it was sitting at 3.1. This little guy was onto something. He carried my clothes, giving sets for my feed, he became my assistant. Very soon he was my “Buddy’ our amazing fox red Labrador.
Back on the Harley-Davidson®
The summer has been fairly kind to bikers this 2022 in Scotland. A great many dry sunny days and even on the cloudier days the sun has made an appearance on several occasions. For many friends they have been attending bike rallies, going off on super runs. No matter if it is long or short just the getting out for a while whether it is with a group of mates or a solo run. That feeling of freedom with not a care in the world and to cap it all the fabulous scenery that our country has to offer is most definitely worth taking to the road for. However I have had a medical issue with my gastrostomy tube and wasn’t feeling too great at the start of the season. Not like me at all but I welcomed my regular visit to one of my consultants. We had a long chat and it was decided I would get my lifesaving rig removed and a further procedure performed in hospital. Once this is done hoping I will be back on the Harley-Davidson® in no time.