As Net Cancer Day dawns I say goodbye to a very dear friend
It’s November already, Jack Frost has made an appearance on the odd occasion — I most definitely now know winter is approaching. For us rare beings November 10th is Neuroendocrine Cancer Day. Since the day my consultant told me my condition could be managed and treated but not cured…
London, the city that keeps me alive more ways than one
My first memory of London; I am 11 years of age and in London with my Mum and Dad, we are passing a lamppost with ER printed on. Dad says “Biscuits look at that Elizabeth Reigns, you work hard sweetheart and you can be a boss too” My folks always gave me the encouragement and love needed to go forward in life. They helped me feel safe and secure. In 2012 I took the train with my hubby to London, this time not for a holiday but to see the expert Professor Caplin at The Royal Free. Despite needing diagnostic tests and treatment for incurable stage 4 neuroendocrine cancer and carcinoid syndrome Steve and I found time to explore new avenues. See museums, art galleries, The Tower, take in a show. One thing I am most certain of London, the city that keeps me alive more ways than one is my most favourite city.
Happy Scribbling Scottish Granny
About Me — The Writer with Carcinoid Syndrome I’m Elizabeth, I have a passion for writing and photography. I absolutely love to travel on our Harley Davidson and raise awareness of neuroendocrine cancer. I have a tremendous love for my family and Labrador Retrievers and try my best to live life to the full. My glass is more…
Talking about nutrition
Over the last year I have been missing out in meeting up with chums and support network at Neuroendocrine cancer support meetings organised by the charity TAECT We have however had zoom meetings. Had a chance to chat and share a story or two over the internet. Our last meeting we had a guest specialist. The zoom meeting was different this time it was a question and answer session with dietician/nutritionist, Tara Whyand specialising in Neuroendocrine cancer and carcinoid syndrome. This evening in particular we were talking about nutrition.
Back on the Harley-Davidson®
The summer has been fairly kind to bikers this 2022 in Scotland. A great many dry sunny days and even on the cloudier days the sun has made an appearance on several occasions. For many friends they have been attending bike rallies, going off on super runs. No matter if it is long or short just the getting out for a while whether it is with a group of mates or a solo run. That feeling of freedom with not a care in the world and to cap it all the fabulous scenery that our country has to offer is most definitely worth taking to the road for. However I have had a medical issue with my gastrostomy tube and wasn’t feeling too great at the start of the season. Not like me at all but I welcomed my regular visit to one of my consultants. We had a long chat and it was decided I would get my lifesaving rig removed and a further procedure performed in hospital. Once this is done hoping I will be back on the Harley-Davidson® in no time.
A walk in the sunshine
August was always a month of celebration, I was born on the 6th of the month in 1966 and married on the 22nd in 1986. However when my fabulous Mother died on the 9th of August in 2013 I felt like the life had been sucked out of me. And most certainly did not feel like celebrating. As the years have ticked on I have found I miss her more each day. The telephone rings first thing in the morning and I still expect it to be my Ma. My heart aches, I yearn to sit and chat and share a story or two like we always did. There is so much I want to tell her and the best place to do this is having a blether and a walk in the sunshine.
A simple heel prick test
As the time get near to the birth we are naturally excited. Looking forward to that healthy bouncing baby. Whether it is a planned labour an unexpected delivery the nursing staff do all in their power to assist. Afterwards baby gets all the appropriate checks including one that many most people never give much thought to. And that is a simple heel prick test. For most parents they will let the professionals do their work and not give a thought to why the needle is going in the little one’s foot. And at such a happy time why should they?
Our bikers BBQ
Already we are half way through the year of 2022. Finally after the last few years of PPE, mask wearing during covid and lockdown we are getting some normality in our lives. Covid will never disappear however we are dealing with things and actually getting out meeting each other and…
Virtual Reality in Healthcare
Dr Elizabeth Johnston-young When we think of a headset being worn, the first thought is usually gaming and fun. These unusual looking head mounted state of the art googles bring the person wearing them into their own world. Yes these headsets are widely sold and worn worldwide and enjoyed for playing many games…